Rock4EB! concert raises over $1 million for butterfly skin disease

This year's star-studded Rock4EB! concert for Epidermolysis bullosa was a success.

On September 21, the Epidermolysis Bullosa Medical Research Foundation held its 7th annual event in Malibu, California, raising over $1 million in one night for research and the search for a cure for the rare skin disease. The Foundation is the only all-volunteer, nonprofit funder of EB research.

This year, several celebrities supported the cause, including Pink – who performed as a special artist at the concert -, Courteney Cox, Kaley Cuoco, Tom Pelphrey, Elizabeth Olsen, Brad Pitt, Ines de Ramon, Catherine Bell, Judd Apatow, Kim Basinger, Ed O'Neill and more.

Andrea Pett-Joseph and Paul Joseph founded the EBMRF branch in Los Angeles in 2005 and took over the day-to-day operations of the foundation that same year. Their commitment began after their son Brandon, now 20, was born with epidermolysis bullosa.

EB – often called “butterfly disease” because it causes the skin to become as sensitive as a butterfly's wings – is a genetic disorder that causes painful blisters on the skin and internal organs with even the slightest touch or friction. This results in disfiguring scars and often early death from skin cancer.

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Almost 20 years later, Andrea and Paul say the EBMRF is best known for its Rock4EB! concert. During the event, several stars stressed how important the foundation was.

“This is something that is very close to my heart,” Cox told PEOPLE. “This event is so important because we need to raise awareness. We need to keep raising funds. This charity that is operating behind the scenes, nobody understands it. This needs to be talked about.”

“I've been around this for a very, very, very long time and I've seen what this can do,” Cuoco said of the fundraiser. “I just love being here and being able to provide as much support as I can. I love this family and I think this is a horrible, horrible disease and it shouldn't be real.”

“It's a really important charity and they're making great strides,” added Apatow, the event's host. “So I'm always happy to help when I'm called.”

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Ahead of the annual fundraiser, Andrea told PEOPLE she can't believe she has been working with the foundation for two decades and assured that her work is far from over.

“Sometimes you run a foundation and you're there because it's about the cause, but you're forced into it for different reasons. And for us, of course, this is a very personal thing,” she said. “So we're staying here until we figure it out. And of course we're really happy with the progress we've made.”

“We always joke with all the researchers and say, 'We'd love nothing more than for you to put us out of business,'” Paul added with a laugh. “But yes, we're excited.”

“We're never going to have enough money to fund something from idea to actual public use,” he continued. “But the idea that we can pass the baton and get other pharmaceutical companies and other foundations involved and do more research is really the multiplier effect where we felt like we had added some value.”